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Thursday
May 24, 2012
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  >> Book >> Biographical >> ID #1030039  |   Show DetailsPrinter Friendly Page Tell A Friend
Our Fibromyalgia Blog Book
This will show our daily fight with Fibromyalgia, so others can learn that it's real.
Rated:
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Avg Rating: (11)
         This blog will chronicle my daily battle with Fibromyalgia, sometimes comparing it to the battle my wife, Kenzie has with the same illness. Many don't believe it's an actual illness, though its existence is recognized more and more in the medical community. I'm hoping that by shedding some light on what it can do to a person we can make others aware that it is indeed real, and that it can hit anyone of any age at any time. It's not deadly, by any means, but it can drastically change your life. It can be a real and aggravating pain in more ways than one(pun intended). MANY more ways.
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20.  So Far, Not BadID #425881 
Posted: 5-14-2006 @ 4:00 pm EDT 

         Today's entry has to be early. I didn't do as bad so far today as I thought I would. It was in the low to mid 50's for my daugher's soccer game this afternoon, and very damp. But my knees didn't really bug me this time. Go figure. But then, with Fibro you can't figure. Let's put it this way: with Fibromyalgia, in terms of how it's going to hit you at any given moment, and for how long, there's only one way to say it - the only thing you can count on is that you can't count on anything. No typical consistency, even for a given patient. The very next second can bring a whole new pain, in a new place, or one you had just yesterday. Or an hour ago. You never know. Anyone would have a far better chance of winning the lottery or winning in Las Vegas than they would have of predicting what Fibro will do.
         But I'm not knocking this relatively pain-free moment. Odds are in won't last. Especially since I have to be out late tonight picking Kenzie and Derek up at the airport. The plane is scheduled to arrive at CVG at 11:33 P.M. I plan on being there early, and am prepared to stay late if there's a delay. So I'm pretty certain this pain-free moment of mine will NOT last till I get to bed tonight. But, one can hope. I'll find out tonight if Kenzie is still free from back pain, and if not, was she still free of it when she boarded the plane in Colorado. We'll see if her thought about the atmosphere up there pans out for the "long" term - like her whole 4-day stay.
         I'm off. I have some things to do before I leave to pick them up. Watch that start my pain on its own. LOL I wouldn't be surprised. Later, all!
 


19.  "Is It A Clue?"ID #425572 
Posted: 5-12-2006 @ 11:28 pm EDT 

         That's what Kenzie and I are wondering now. She and her son Derek are in Colorado for her niece's wedding. And Thursday night, when she called, she said that the thin air at that altitude, and the dryness in the air seem to make a difference in at least one of her pains - her back. They'd arrived there on Wednesday evening, so they'd been there about 24 hours. The change? For only the second time in her life since her back pain had started about 20 years ago or so, it was completely gone. She said the only other time she had been completely free of that pain was when she was in the hospital and on morphine. We'll see if any of the back pain returns before she leaves there Sunday afternoon.
         For those who are now wondering, yes, there's a down side. She also said that that Thursday morning when she first awakened, she felt as if she'd been run over by a semi. Everything hurt - literally - EXCEPT her back. And she had the first nosebleed she'd had in many, many years. So yes, the thin air and dryness were playing with her pains; but it wasn't all good news.
         We only talked briefly tonight, I'm hoping for another call tomorrow sometime so I can ask her about the back pain, and more.
         As for me, my pains are normal. My lower legs are killing me right now (11:25 P.M. Friday night). I'll be going to bed shortly after I enter this. I took the Nortriptylene about an hour ago so it should kick in almost anytime. We'll have to see what tomorrow brings for both Kenzie and me. Cold, damp air could well make me miserable, and my daughter has a soccer game at 1:00 P.M. Sheesh. Well, that, and how Kenzie feels tomorrow will be covered next time. I'm off to bed.
 


18.  A Bit of A Strange DayID #424574 
Posted: 5-8-2006 @ 9:47 pm EDT 

         Greetings again, all! Today was a bit weird for me, and one that hurt Kenzie a bit.
         For some strange reason I have no chance of figuring out, my legs hurt me more this morning than they did this afternoon. That's backwards from the usual routine. They're bugging me more now, but it's 9:34 PM. Sheesh. We'll see what they do tomorrow.
         As for Kenzie, she did a good bit more walking today then usual as she and her son Derek had some shopping to do before taking a trip later this week. During all that walking, she had a misstep, and it threw her back and her knee out. She's going to try to get to the chiropractor's tomorrow, and she's resolved to be very careful on the trip, and will make a visit to the chiropractor when they get back. She's catching up on some sleep at the moment. All that activity drained her energy. Nothing new there, for either of us.
         We'll see what tomorrow brings.
 


17.  It's Hard to believe it's been almost two weeks!ID #423945 
Posted: 5-6-2006 @ 5:03 pm EDT 

         It doesn't feel like two weeks since I was last here. Sheesh. Some days flew by (usually the ones with the least pain), and some felt like they took forever, either from the pain or the fatigue.
         I was actually so worn out when I got home from work this past Friday night (5/5) that I actually took a nap right off the bat, had Kenzie get me up at 10:00 to watch Numbers (we both love that show!) and we did that and ate a late supper together.
         Then this morning, she and I got up and checked out an estate sale nearby. The piece we wanted had been sold but we got our hands on a great bunch of record albums. Not CDs, the OLD record albums. From the 50s and 60s. for a buck each, 3 for $2.00. We got 18 of them in great condition. Yes, we have a turntable to play them on. Actually, we have two. LOL
         Then, wouldn't you know it, I fell asleep again, in this chair, between that time and my daughter's soccer game. So we'll see what time the energy disappears tonight.
         My legs have been bothering me all day, especially the knees. I had to do some knee bends during the soccer game to "loosen them up" and take away most of the pain. I'll be stretching them again after I send this and before I start some writing on my latest piece here.
         Kenzie's been doing pretty well the last few days, but then she had an appointment with the chiropractor last week, which always helps. But the pains never really leave us entirely alone anymore. THAT part we're used to. It's only a question, from moment to moment, of "What's going to hurt, and how bad will it be?
         I'll do my best not to be so long between updates. That's better for everyone, us included. Take care, all!
 


16.  The Verdict Is InID #421188 
Posted: 4-23-2006 @ 1:41 am EDT 

         Hello again, everyone. I said in my last entry that we'd see how my energy level was when I got back from the reunion committee meeting.
         I think the excitement of the bull session and the memories that came up for all of us to share gave me a second wind of sorts. I only ran out of "spoons" about an hour ago, and it's 1:40 AM. After I send this I'll crawl in bed and worry about the shower in the morning. My legs are killing me from the waist down right now. I'll probably have to take a Neproxin along with the Nortriptylene this time. See you all later. I'm off to bed. Smile
 


15.  Sorry I haven't been here...ID #421095 
Posted: 4-22-2006 @ 3:30 pm EDT 

...in a while. It's been a roller coaster. Some days it's been time constraints, but most of them it's been either pain or fatigue, both from the Fibro.
         Had a couple days where I virtually hurt all over at once; arms, legs, back. And a few evenings where I didn't have the energy to write (type), only to read. The mouse doesn't take much energy.
         Kenzie's been in the same position, almost literally. Pain and / or fatigue. She's sleeping right now, asked me to get her up in a couple hours.
         I slept about 9 hours last night, midnight to 9 this morning. Did pretty good on energy that way so I took the futon apart in Tiffany's room and took it to the garage. We've got a bunk bed coming for her on Monday. Now I have enough energy to do my laundry and do a little updating, so here I am. But that's about the extent of my energy. I'll have that level for a while, but I'll probably run out of spoons (energy) a bit earlier than usual tonight. I'm going to try to stay up a little and watch the late news, though. I don't get to during the week. Can't afford that little sleep when I have to get up for work. It's not enough.
         Right now, my legs are JUST starting to hurt a bit. They'll take a while to really get to bugging me, thankfully.
         And I can't get TOO tired too soon. I have a 7:00 meeting of my high school reunion committee tonight. Stuffing just under 300 envelopes to get a response for our reunion in late September. 40 years since I graduated. That number's a bit hard to swallow right now, but it's not tearing me apart. Just hard to believe. It'll undoubtedly be a bull session too LOL. We did that at a local restaurant a couple months back when we started organizing this thing. Met at 7:00, didn't break it up till about 10:30. We'll see what I feel like energy wise after tonight's meeting is over. *Smile*
 


14.  Today Was My TurnID #416729 
Posted: 4-1-2006 @ 6:55 pm EST 
Edited: 4-1-2006 @ 7:03 pm EST 

         In recent entries here, I commented on how, on a small number of days, Kenzie would end up taking a nap that was basically unplanned when the Fibro kicked in and sapped her energy. Today was my turn, for only the second or third time in many months.
         I was at work this morning from 9:00 AM to noon. I got home about 1:00 P.M. after a drive that told me MY body was winding down. I'd even felt a bit sluggish just walking from the office to my car.
         When I got home, I was already dragging. I went to the bedroom, emptied the pockets of my slacks and shirt so I wouldn't end up laying on anything uncomfortably, laid down on my back on the bed, and that was it. I was out like a light.
         Proof? 1. I never (normally) sleep on my back. When Marilyn got back from the store and checked on me about 4:00, I was still on my back, my arms on my chest. I hadn't moved. 2. I snore every night. When she checked on me she said I hadn't made a sound since she'd been home.
         I got up for good about 5:30. And THAT'S when I noticed I hadn't taken my office ID badge off my belt. Emptied the pockets and forgot the badge. Whick also proved how tired I'd been. We'll see how late I'm up. I still don't feel I'm at full speed, I'm still a little sluggish. So I guess we'll see what happens over the next few hours.
 


13.  It Started Out OK, but then...ID #415680 
Posted: 3-27-2006 @ 8:45 pm EST 

... it hit the fan. Starting shortly after noon, and growing since then. My arms, legs and joints all hurt. Still do. This might be short just because I might have to do what Kenzie has done a few times recently and simply crash early. I feel like I'm out of energy, or close to it. And one of the proven things about Fibromyalgia is that your body drains its own energy in its effort to fight the pain. So I'm not surprised my energy is slipping through the floor and disappearing. LOL (YAWN)
         I'm out of here to grab a bite to eat, take my Metformin and Nortriptylene and hit the sack. Hopefully tomorrow will be better.
 


12.  It Feels Like It's Growing...ID #415256 
Posted: 3-25-2006 @ 8:53 pm EST 

         Last night, Kenzie and I crashed at the same time. We both ran out of energy about 12:30 this morning. That never happened before. But I wasn't knocking the extra time together.
         For some reason, it took longer than usual for the pain in my legs to subside last night. And that concern turned out to be justified this morning. My legs have bothered me practically all day. From an hour after I got up, right to this very moment. The longer I was on my feet at one time today, the more they hurt. And to top it off, I started getting the stomach pains that she's had off and on for months. Swell.
         Kenzie's fared better than me today, though both our stomachs are on edge a bit. She's not hurting overall as much as I am, I don't think. And I hope that's true - she deserves a break. We'll see if either of us gets a break tomorrow. We have a busy schedule. We'll see how much of it we actually have the strength, and lack of pain, to get done.
 


11.  My legs are at it again... surpriseID #415055 
Posted: 3-24-2006 @ 11:17 pm EST 

         You read it right. My nightly leg pain and muscle tightness is back. It's 11:05 PM, and they've been bugging me for about 2 hours, maybe a little more. I've already taken the Nortriptylene, and when it kicks in I'll be heading to bed so I can take full advantage of the relaxation I get from the medication.
         Kenzie had a fairly decent day today, just the chronic back pain and a bit of action from her bad knee is I think all she had to fight today. Oops. I almost forgot her bout with IBS this morning. Sheesh.
         My legs were bugging me a little most of the day, but didn't really get going until about 9:00 PM tonight. I guess we'll see what the weekend brings.
         Take care, all! I'm off to bed. I can feel the relaxation setting in from the Nortriptylene. See you next time!
 



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