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Had the IEP meeting yesterday to determine if Journey needed an IEP for school or not. According to them she doesn't. They say she seems to be on track with everything, and if there's any problems when she enters school or the developmental pediatrician we're taking her to in December diagnoses her with anything, then we'll talk about an IEP again.
Part of me is relieved because I was hoping that she's average and on track. They seem to think she's fine, and that Pre-K will straighten her out and get her on the right track, even with potty training. I want to agree with them, nod my head vigorously and sing along with the choir. Maybe all of this is worry for no reason.
But then there's this nagging little part of me that keeps saying "You KNOW there's something wrong. You've known it since she was a month old. You keep telling everyone but no one is listening, and it's not going to be till she's already 3 and a half months into school that she's going to get diagnosed with it and everyone is finally going to see what you've been worried about all along." Something just isn't sitting right with me. I don't think it's as cut and dry as everyone keeps claiming it to be, even though I'd love it to be. I'd love to be proven wrong on this, and she starts understanding everything that's said to her and she does things with gusto, including pottying. I'd love to be wrong on all of this, but something inside me tells me I'm not. I know it, why doesn't everybody else know it?
*Sigh.*
All I can do is keep pursuing it. It seriously sucks that we can't see a developmental pediatrician until December 15th, but unfortunately with specialists, that's the way it works. I'm concerned that that appointment is going to fall through because I haven't received any kind of paperwork or confirmation about the appointment at this point like they told me they would send out. So much that I'm stressed out about with this situation. Only so much I can do about it though.
I just hope that the teachers realize that she may need a little more work than the rest of her peers, and are kind about it. I don't want them to label her as stubborn or refusing. I was never worried about Ryan in school, and he's done really good, but I'm afraid Journey is behind, and I'm scared for her. I hope they're right, I hope Pre-K turns her around, and everything will be okay.
I wish this potty training thing would already finish up and be done with. I'm so sick of pull-ups and messes. I'm sick of regular underwear and messes. I just want this to be done with already, and she's so stubborn about it. I seriously believe she doesn't have the sensation of a full bladder yet, and that she doesn't hold it to get that sensation. I think she pees every little while, as soon as she feels something in her bladder, regardless of how much it is. All I can do is keep guessing and sending her off to the toilet, in hopes that she hasn't already peed herself or pooped herself. More than half the time, she is and she does. I don't know what else to do.
That was another thing we talked about at the meeting. They didn't seem all too thrilled that she wasn't potty trained yet. I wish I could make her potty trained. They threw out suggestions, like limiting her liquid intake, and timing her liquid intake. I've done the limiting one already, and it doesn't matter. If anything, she only drinks about 10 oz of milk a day and 6 oz of juice, so it's not like she's getting all that much liquid in her system as it is anyway. "The key is for her to feel a full bladder" they said. Well, like I suggested, she doesn't let her bladder get full, she just pees as she goes along. How do I make her hold it till her bladder is full? I CAN'T. I can't do ANY of this for her, and they're sitting here telling ME like I have control?? Do they not understand that this is not a LAZY issue, this is a bodily function issue?? I can't make her do ANYTHING. I can tell her to go sit on the toilet when I THINK she needs to go because she's had some liquid in her system, but that doesn't mean she has to listen. She can decide to pee herself right then and there instead of sitting on the toilet and letting it out. She can decide to not pee at all while sitting on the toilet. And what do I do then pray tell? I can't FORCE liquid out of her body. The reason I sigh and say "She's going to school with pull ups" is because I HAVE NO CONTROL OVER THIS. She will do this when she's damn good and ready, she's proven this to me time and time again, and I can do everything I want to do, I can limit liquid, I can cut her off, I can tell her when to go to the bathroom, I can put her in panties, I can make her sit there on the toilet for hours, I can take toys and movies away, I can sit her in time out, I can bribe her, IT DOESN'T MATTER. She will do this when she's damn good and ready, and I HAVE NO CONTROL. It just seriously makes me want to cry. I don't understand why no one gets this. Do you think I WANT a 4 year old that's not potty trained? Do you think that I find this easier, or more fun, or entertaining? NO! I want this done as badly or more bad than ANYONE does. I'm tired of people looking at me like I'M the lazy one who just refuses to take time out of my day to train her properly. That's NOT it. I've TRIED EVERYTHING. LITERALLY EVERYTHING. I don't know what else to do other than bang my head against the wall until I break my skull and let my brains ooze out. The only thing I can think that may help her is going to school and seeing the other kids go. That's the ONLY thing I can think, and that's the only thing I haven't tried yet. I can't try it because she's not in a daycare type setting in order to get that, and I can't afford to put her in daycare just to get her potty trained. If I could afford it, then I would've done it already.
So basically put...the meeting was helpful to my hopeful side, but otherwise made me want to cry with frustration.
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