by N. M. Barnes
Introduction to Baby Sister's Song
|Baby Sister is a remarkable little girl who was born with a rare birth defect called Esophageal Atresia with a Tracheoesophageal Fistula (EA/TEF). This birth defect affects approximately 1 in 4000 live births, however, the cause is unknown.
Baby Sister looks great on the outside and she is a very happy child, but her medical problems are vast and affect many of her internal organs. Baby Sister has suffered with life threatening medical problems right from the beginning. Her esophagus did not connect to her stomach, but rather, it connected to her lungs; so for her, simply eating or drinking can be a life threatening event.
Baby Sister has had several surgeries; multiple invasive and non-invasive procedures; lots of hospital stays and medical appointments; and massive amounts of medications to try to correct her medical problems… but she still suffers frequently. Unfortunately, children born with EA/TEF often have a plethora of other medical conditions, and Baby Sister is no different. She has 11 other conditions and she has endured a great deal of trauma to her little body.