My youngest child was born with a spinal anomaly. From the 17th week of my pregnancy, we knew that something was not right. This journal chronicles all the feelings and experiences we have gone through. From utter helplessness to wracking tears to immeasurable gratitude to God for His blessings. I will take you on this path that we have walked and I hope you will see the encompassing love for our son and our faith in the Lord. God bless.
Some of these so-called 'professionals' can be extremely inconsiderate and unthinking. They are prone to the exploitation of vulnerable people in the furthering of their own ends. Blaming yourself is likely a perfectly natural reaction, however these sorts of ill-thought out statements are NO reflection whatsoever on you and your circumstances. I know that my mother often wondered similarly, as do so many parents of children with special needs. She still does-thirty-three years on. I don't blame her. What happened, happened.
(If you feel like it, you may like to read some of the articles in my port).
I think that you were right to call this lawyer on this. These sorts of people need a wake-up-call. They have to understand that their words and actions have consequences for many others beyond themselves.
I've greatly enjoyed reading your blog. You write particularly well, and with such heart, even throughout your difficult and painful moments. I was born with a physical disability myself (as was my younger brother). It is a terrifically long road to travel for any parent (as well as children, siblings, extended family and friends). However, I'm quite sure that you realize that already, even this early on. Jack is a blessing. Truly. All of the people whom I've known with spina bifida are remarkable people. One has been my best friend since junior school.
Now, I have a six-month old daughter, myself. Parenting with a physical disability is challenging, yet I would not swap it for anything. I'm so grateful to have a healthy, bright, little girl.
Please keep your faith, wherever your journey and decisions take you, your husband, Jack and his sisters. It's very important. Giving yourself an 'escape hatch' for feelings, emotions and events is also expecially important-as you are discovering.
Blessings to you all, and bright hopes for Jack's future hospital appointments.
lol... I had this big wonderful smile on my face while I was reading your blog entry. Congratulations on Jack's desire to take off walking..... seems like he wanted to skip walking altogether and just run!!!
Thats so good to hear... pretty soon he will keeping up with his brother and sisters!!!!
I can sigh a sigh of relief now, and sleep a bit more peaceful. You, your family and especially Jack have been on my mind and in my prayers on a daily basis.
I am so glad to hear he is home and with you now. I am sure he will bring many years of laughter and smiles in your life. My son still does, even though he is 25 yrs old and in the military.
I would think, if you are interested, that Readers Digest may be interested in a story such as this. The love that emits from your family is so great, and your beliefs in God so intimate and strong, it would be a blessing for other people to read about it.
It has made my soul brighter for reading it. Please give Jack a extra hug and kiss for all of us, and again... I am so happy to hear he is home!!!
SO pleased to read this news and hopefully the road to recovery will be short. Sounds like he has a caring team around him and it will be thanks enough for them to see him well.
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