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Saturday, May. 4, 2024

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He Takes My Heart With Him

by momoffour

Rated: E · Book · Emotional · #976801

Journal writings about my youngest son's journey with spina bifida

My youngest child was born with a spinal anomaly. From the 17th week of my pregnancy, we knew that something was not right. This journal chronicles all the feelings and experiences we have gone through. From utter helplessness to wracking tears to immeasurable gratitude to God for His blessings. I will take you on this path that we have walked and I hope you will see the encompassing love for our son and our faith in the Lord. God bless.

Show Recent Comments

10 Most Recent Blog Comments:

Kåre Enga in Montana

Apr 3, 2006 at 12:22pm
In response to "A Sister's Love"

This is a very sweet entry. Makes me want to pick Ashley up, twirl her around, give her a good-night's kiss and gently set her down.

You are blessed indeed.

Rainbowapple

Feb 15, 2006 at 1:15am
In response to "Hurtful Words"

Hello,

Some of these so-called 'professionals' can be extremely inconsiderate and unthinking. They are prone to the exploitation of vulnerable people in the furthering of their own ends. Blaming yourself is likely a perfectly natural reaction, however these sorts of ill-thought out statements are NO reflection whatsoever on you and your circumstances. I know that my mother often wondered similarly, as do so many parents of children with special needs. She still does-thirty-three years on. I don't blame her. What happened, happened.

(If you feel like it, you may like to read some of the articles in my port).

I think that you were right to call this lawyer on this. These sorts of people need a wake-up-call. They have to understand that their words and actions have consequences for many others beyond themselves.

Take care of yourself.
Blessings,

~R.

Rainbowapple

Jan 31, 2006 at 11:10pm
In response to "Sick - Poor Little Guy"

Praying for him, too. My husband, baby and I send our prayers to you and your little lad.

Stay Strong,

~Rainbowapple

Rainbowapple

Jan 3, 2006 at 11:46pm
In response to "Appointments, appointments, appointments"

I've greatly enjoyed reading your blog. You write particularly well, and with such heart, even throughout your difficult and painful moments. I was born with a physical disability myself (as was my younger brother). It is a terrifically long road to travel for any parent (as well as children, siblings, extended family and friends). However, I'm quite sure that you realize that already, even this early on. Jack is a blessing. Truly. All of the people whom I've known with spina bifida are remarkable people. One has been my best friend since junior school.

Now, I have a six-month old daughter, myself. Parenting with a physical disability is challenging, yet I would not swap it for anything. I'm so grateful to have a healthy, bright, little girl.

Please keep your faith, wherever your journey and decisions take you, your husband, Jack and his sisters. It's very important. Giving yourself an 'escape hatch' for feelings, emotions and events is also expecially important-as you are discovering.

Blessings to you all, and bright hopes for Jack's future hospital appointments.

~R

Mel aka Mrs Tor

Nov 23, 2005 at 5:31pm
In response to "Thanksgiving"

Your Faith will get you through. God has given you a strong husband and through him, he will provide. I hope you all have a wonderful Thanksgiving....

I love reading your blog, it is always so full of love and faith, I feel blessed just reading it!!

Mel aka Mrs Tor

Nov 16, 2005 at 10:34pm
In response to "Jack is Starting to Walk!"

lol... I had this big wonderful smile on my face while I was reading your blog entry. Congratulations on Jack's desire to take off walking..... seems like he wanted to skip walking altogether and just run!!!

Thats so good to hear... pretty soon he will keeping up with his brother and sisters!!!!

Deelyte- Chillin'

Oct 12, 2005 at 7:10pm
In response to "Home and Well"

Glad to hear he is doing better! I hope he continues to grow stronger by the day.

Best wished to your family.

Mel aka Mrs Tor

Oct 12, 2005 at 6:40pm
In response to "Home and Well"

I can sigh a sigh of relief now, and sleep a bit more peaceful. You, your family and especially Jack have been on my mind and in my prayers on a daily basis.

I am so glad to hear he is home and with you now. I am sure he will bring many years of laughter and smiles in your life. My son still does, even though he is 25 yrs old and in the military.

I would think, if you are interested, that Readers Digest may be interested in a story such as this. The love that emits from your family is so great, and your beliefs in God so intimate and strong, it would be a blessing for other people to read about it.

It has made my soul brighter for reading it. Please give Jack a extra hug and kiss for all of us, and again... I am so happy to hear he is home!!!

Scarlett

Oct 12, 2005 at 6:11pm
In response to "Home and Well"

Sniffle...what a lovely entry...sniffle. SO pleased Jack is well and I pray he'll stay that way. Thank goodness the writing has helped you through.

Scarlett

Oct 11, 2005 at 1:09pm
In response to "Tuesday"

SO pleased to read this news and hopefully the road to recovery will be short. Sounds like he has a caring team around him and it will be thanks enough for them to see him well.

#66. Your Test Results
ID #351213 entered on June 2, 2005 at 10:16pm

#65. The First of the Waiting
ID #351592 entered on June 4, 2005 at 10:23pm

#64. Level II Ultrasound - Round One
ID #351879 entered on June 6, 2005 at 8:54am

#63. A Blessing - Although We Didn't Know It Yet
ID #351998 entered on June 6, 2005 at 8:53pm

#62. Level II Ultrasound - Round 2
ID #352256 entered on June 8, 2005 at 12:25am

#61. Next step. . . new doctors
ID #352456 entered on June 8, 2005 at 9:13pm

#60. Our Perinatalogist
ID #352720 entered on June 9, 2005 at 10:00pm

#59. A Sacrococcygheal Teratoma
ID #352957 entered on June 10, 2005 at 11:32pm

#58. Waiting and Watching
ID #353269 entered on June 12, 2005 at 8:43pm

#57. His Birth
ID #353914 entered on June 16, 2005 at 9:25pm

#56. His Birth Continued. . .
ID #357169 entered on July 31, 2005 at 10:32pm

#55. His First Moments
ID #357286 entered on July 2, 2005 at 10:03am

#54. We Are Running Tests
ID #359095 entered on July 13, 2005 at 5:16pm

#53. Surgery - Three Days Old
ID #359662 entered on July 13, 2005 at 5:27pm

#52. Going to Surgery
ID #360155 entered on July 16, 2005 at 12:36am

#51. Surgery
ID #360419 entered on July 17, 2005 at 4:27pm

#50. The Outcome
ID #360662 entered on July 18, 2005 at 9:43pm

#49. After Surgery
ID #361895 entered on July 25, 2005 at 5:19pm

#48. Getting Ready to Go Home
ID #362744 entered on July 31, 2005 at 9:58pm

#47. A New Journey
ID #363119 entered on July 31, 2005 at 10:27pm

#46. Spina Bifida
ID #363207 entered on August 1, 2005 at 8:14pm

#45. The Guilt
ID #363472 entered on August 2, 2005 at 5:30pm

#44. The Wait for the next Surgery
ID #366423 entered on August 15, 2005 at 10:30pm

#43. A Peach
ID #366610 entered on August 16, 2005 at 5:26pm

#42. Buh-buh-buh
ID #367649 entered on August 21, 2005 at 10:16pm

#41. Closer
ID #371433 entered on September 12, 2005 at 7:39pm

#40. The Plastic Surgeon
ID #372744 entered on September 13, 2005 at 8:57pm

#39. Oh, God
ID #373817 entered on September 18, 2005 at 9:36pm

#38. God's Grace
ID #374153 entered on September 20, 2005 at 10:48am

#37. Three Days
ID #374905 entered on September 23, 2005 at 8:14pm

#36. GOD IS GOOD!
ID #375831 entered on September 27, 2005 at 11:58pm

#35. The Story of Surgery - Part One: The Little Red Wagon
ID #376069 entered on September 29, 2005 at 12:00am

#34. The Story of Surgery - Part Two: The Wait
ID #376187 entered on September 29, 2005 at 3:16pm

#33. Recovery
ID #378075 entered on October 8, 2005 at 3:41pm

#32. Twenty-Four Hours
ID #378078 entered on October 8, 2005 at 3:50pm

#31. Holding Jack
ID #378080 entered on October 8, 2005 at 4:03pm

#30. Going Home
ID #378084 entered on October 8, 2005 at 4:16pm

#29. Back to Normal
ID #378087 entered on October 8, 2005 at 10:34pm

#28. Fear
ID #378138 entered on October 8, 2005 at 11:02pm

#27. Back to Mott's
ID #378217 entered on October 9, 2005 at 11:05am

#26. Waiting
ID #378321 entered on October 9, 2005 at 9:25pm

#25. Tuesday
ID #378599 entered on October 11, 2005 at 9:36am

#24. Home and Well
ID #378912 entered on October 12, 2005 at 4:59pm

#23. Forgetting
ID #382974 entered on October 31, 2005 at 10:24pm

#22. Jack is Starting to Walk!
ID #385813 entered on November 13, 2005 at 10:09am

#21. Thanksgiving
ID #387861 entered on November 22, 2005 at 9:44pm

#20. Whoa! What a couple of weeks!
ID #392650 entered on December 14, 2005 at 10:53pm

#19. Around and Around
ID #393275 entered on December 17, 2005 at 6:48pm

#18. Appointments, appointments, appointments
ID #396660 entered on January 3, 2006 at 10:19pm

#17. More Painful Tests
ID #398446 entered on January 10, 2006 at 8:24pm

#16. Good News!
ID #398677 entered on January 12, 2006 at 12:05am

#15. More Surgery
ID #398976 entered on January 12, 2006 at 11:42pm

#14. He's Got Quite An Arm!
ID #401422 entered on January 22, 2006 at 10:32pm

#13. Sick - Poor Little Guy
ID #403660 entered on January 31, 2006 at 5:44pm

#12. Better, Finally!
ID #404404 entered on February 3, 2006 at 4:35pm

#11. Ye-ah.
ID #406722 entered on February 14, 2006 at 11:36pm

#10. Hurtful Words
ID #406873 entered on February 14, 2006 at 11:37pm

#9. A Sister's Love
ID #408784 entered on February 24, 2006 at 12:08am

#8. What Does He Have???
ID #409341 entered on February 26, 2006 at 9:17pm

#7. Classical Music
ID #412863 entered on March 13, 2006 at 11:23pm

#6. Big Guy . . .
ID #417080 entered on April 3, 2006 at 2:50pm

#5. Jack's Third Surgery Next Week
ID #421964 entered on April 26, 2006 at 11:36pm

#4. Doing Great
ID #424302 entered on May 7, 2006 at 11:43pm

#3. Pathology Report
ID #428139 entered on May 24, 2006 at 10:28pm

#2. Quick Update
ID #433492 entered on June 14, 2006 at 6:23pm

#1. Action Jackson
ID #444026 entered on July 28, 2006 at 11:17pm

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