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 |  Fibro fog, pain, writing sandwiched in between. Quotes. Sermon notes. Encouragement. |
A Texas Sunrise A friend, William Taylor, took this picture. He visits Surfside Beach with his dogs almost every morning, watching the sun rise while the dogs prance about at the water's edge. This is only about ten miles from where I lived in Lake Jackson, Texas. Sadly, I only visited this beach about four times in the six years I lived nearby. Each day is a challenge. A challenge to get by without thinking about the fibromyalgia pains. A challenge to stay awake when chronic fatigure wants to take over. And a challenge to navigate through fibro fog. I haven't been writing as much as in the past. For years, I wrote at least 500 words a day. Now, I'm lucky if I write 500 words in month. Sigh. For more information about what my day (or life) is all about with fibromyalgia, chronic fatigue, chronic pains, IBS, depression and everything else thrown in, check this out:
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Now I have two nurse navigators, one for breast cancer and one for lung cancer. My breast cancer has been well behaved. I have one small lump that continues to shrink and it has not traveled to lymph nodes. I have one tiny spot in my right lung. Now I have to get a brain scan to discover if it has traveled to my brain. Turns out that lung cancer likes to travel to your brain. Let's hope that my lung cancer is as well behaved as my breast cancer has been. It's not entirely clear yet whether or not I will have several oncologists. As I have mentioned, my current oncology surgeon decided that because of my many chronic conditions, having the oncologist/hematologist prescribe one medication was the best treatment. That has been what shrunk my breast lump. If I end up with several cancer doctors, I already know that they are going to disagree about how much I can handle. My pulmonologist thinks that I should have radiation for the lung cancer. You know what bothers me most? I spend way too much time on health issues. I now use either Navage or a netty pot twice a day to keep my nasal passages open. I have to start using a nebulizer 4 to 6 times per day. The one that my insurance paid for has to be plugged into a wall socket. I ordered one that I can take anywhere. Various meds 2 to 3 times daily. Plus various vitamins, minerals, and supplements. Then there are the doctor visits. Primary care, cardiologist, dermatologist. ophthalmologist, pulmonary doc, oncology doc, oncologist/hematologist, ENT. And the tests!!! Way too much time spent on this. I have to eat and exercise, at least talk with my hubby a few times per day, take my son to his own doc appointments. Geesh. As always, your prayers are cherished. |
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